Every90Minutes

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Our mission is to support the most promising research to find a cure for ALS. We imagine a world where ALS is a treatable and manageable illness, rather than an underfunded and terminal disease, which devastates the lives of individuals and their families receiving a diagnosis every 90 minutes.

ALS, or Lou Gehrig’s disease, is a rapidly progressive and ultimately fatal disease. ALS robs you of the ability to walk, talk, eat, drink, and breathe, while leaving your fully-functioning mind trapped. There is no known cure, and the few treatment options that exist extend life a short period of time, around 2-3 months. Death usually occurs 2-to-4 years from diagnosis.

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Every90Minutes

Doctors and researchers are leading the charge to find a cure, but are in desperate need of funding. With your help, we can accelerate the treatment and cure for ALS from decades to years, save the lives of tens of thousands of people, and create a future where ALS isn’t a fatal diagnosis.

We created the 90 Foundation, a 501(c)3, to raise money for research to treat and cure ALS. We are dedicated to making sure that 100% of the money we raise goes directly towards research and are working directly with organizations like the Houston Methodist Neurological Institute and ALS Therapy Development Institute to ensure that happens.

Jay’s Story

During May 2014, I won a Popular Science Invention Award, celebrated my wife’s 37th birthday, went indoor skydiving to celebrate my daughter’s 7th birthday, and was diagnosed with ALS.

Lou Gehrig famously said during his farewell speech that he was “the luckiest man on the face of the earth.” I always thought that was just a positive spin on receiving a terminal diagnosis. But now I get it. I have a blessed life. The company I founded, Livid Instruments, just celebrated 10 years in business and we are finally enjoying the success of all of our hard work. I am surrounded by an amazing, large and loving family and have amassed some of the best friends a person could ask for, both old and new. This year I will celebrate 11 years of marriage to my best friend, Missy Mekosh, and have two of the greatest little girls (Loghan 7, Peyton 4) that a Dad could ask for. So I get it Lou, I too feel like the luckiest man alive.

I’ve been dealt this hand and I am playing to win. Since being diagnosed I’ve continued to wakeboard with my friends, go camping with my kids, ride off-road motorcycles, started a new form of martial arts and don’t plan to stop anytime soon (follow my Facebook page for proof!). I will continue to take my company into new markets and become a better father, husband, boss, son, and friend. ALS isn’t an incurable disease it’s an underfunded disease. With proper funding, research, and treatment, the thousands of soldiers, athletes, fathers, mother, sons, and daughters diagnosed with this disease won’t have to die with it. I plan to change that, I know I can.

If you’re reading this, you may feel the urge to be sad, angry, or have pity. Please don’t be sorry. I’m not and you shouldn’t be. I’ve taken this time to reflect on how much love I have in my life and it’s made me happier than I’ve been in years. Take this time to reflect on your life and be thankful for what matters most. Please take a moment to help us end this disease. Finding a cure is up to us. I plan on being around for the cure of this disease. Thank you for taking part in my journey.

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